A day in the life post-transplant

Eric has come a long way since he was discharged from Duke post-transplant, but it's taken a lot of work. We thought it might be interesting to show an example of “a day in the life” when he first came home with his new lungs.

  • 6:00 am
    • Wake up, mix inhaled antibiotics and take via nebulizer, check blood sugar and inject insulin, eat breakfast, and take oral medications
    • Boil water to sterilize (for drinking, brushing teeth, and washing) and boil nebulizers to clean for next use
    • Mix drinks for the day with thickener
  • 7:30 am – Load walker and leave for rehab
  • 8:30 – Duke outpatient pulmonary rehab
  • 10:15 – Drive to clinic
  • 10:50 – Appointment with Infectious Disease
  • 11:30 am – Tests (labs, X-rays, PFTs); take Prograf after blood draw
  • 12:30 pm – Take noon medications and refill tube feed formula
  • 1:50 – Transplant pulmonology appointment
  • 2:30 – Nutritionist appointment
  • 3:20 – Endocrinology appointment
  • 4:00 – Drive home
  • 5:00 – Self-monitoring and insulin
    • Check blood sugar and inject insulin
    • Complete pulmonary function testing using handheld spirometer
    • Check weight, blood pressure, pulse, and temperature
    • Record in self-monitoring log
  • 5:30 – Mix up a fresh batch of thickener using xanthan gum
  • 5:45 – Wash hair and clean up using sterile water
  • 6:30 – Eat dinner
  • 7:45 – Do incentive spirometer and speech exercises
  • 8:00 – Refill tube feed formula and flush J-tube
  • 8:30 – Mix both antibiotics for nebulizer and complete inhalation treatment
  • 9:30 – Take nighttime meds and check blood sugar
  • 9:45 – Boil water and nebs to sterilize
  • 10:00 pm – Brush teeth with sterile water and go to bed

Note: Since Eric was still unable to drive or lift more than 5 pounds and was generally still fairly week/tired and unsteady, he had help with many of these. wink

 

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